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Muscular Dystrophy Association
The Muscular Dystrophy Association (MDA) was founded in 1950 as a voluntary national health agency aimed at conquering neuromuscular diseases. Its national chairman, Jerry Lewis, has been a volunteer for more than 50 years and has a long standing tradition of hosting the MDA Labor Day Telethon to raise funds for research and medical care.
MDA has more than 200 offices nationwide. The local MDA clinic is held at MetroHealth Medical Center. Here, RJ receives excellent care from Dr. Irwin Jacobs and a team of doctors experienced in dealing with neuromuscular diseases. Additionally, the local MDA office in Cleveland offers monthly support group meetings for families. Throughout the year MDA is busy sponsoring family activities, fundraising events, Stride & Ride family walk, the Labor Day Telethon and a week long summer youth camp at Camp Cheerful in Strongsville, Ohio. We feel blessed to be connected with such a caring and compassionate group of people. Thank you Jackie Simcic-Becker and all the staff at MDA of Cleveland! We appreciate everything you do for all the families affected by neuromuscular diseases.
To learn more, please visit the Muscular Dystrophy Association (MDA) website:
Parent Project Muscular Dystrophy
Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne Muscular Dystrophy. Founded in 1994 by Pat Furlong, PPMD has improved the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne through research, advocacy, education, and compassion. Because of Pat and her team of very proactive and hopeful parents, families affected by Duchenne have better access to state-of-the-art care information, research is moving forward at an accelerated pace, and legislation now exists funding Duchenne research and outreach programs. It was a wonderful experience meeting Pat and her team at a three day seminar last June in Atlanta, Georgia. We realized we are not alone in our journey and together we can make a difference!
Achievement Centers for Children
The Achievement Centers for Children is a nonprofit agency, founded in 1940, which helps children with a wide range of disabilities develop the skills they need to realize their full potential. RJ receives weekly physical therapy sessions to help maintain his range of motion, strength, balance, and mobility skills. RJ’s physical therapist (Josh Palcic) designed and taught us a series of exercises we perform at home with RJ on a daily basis. RJ also takes weekly swimming lessons with Sandy Howlett. Sandy enjoys helping RJ get more comfortable in the pool and teaching him how to swim!! Thanks Josh and Sandy for all your hard work and enthusiasm!
We always have fun at PT!
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