Well, it is that time of the season when it is so easy to get bogged down with work, school, and getting ready for the holidays with too much shopping, decorating and cooking making. We added yet another dimension and made a visit to Cincinnati Children's Hospital for more routine tests. Results from an MRI to RJ's heart revealed that some scarring on his heart has begun. While this news was disappointing, it is expected with RJ's Duchenne diagnosis. RJ can begin taking medication that the doctors are hopeful will slow down the progression. The heart, after all, is a muscle and will unfortunately be greatly affected by his Duchenne muscular dystrophy. All is not lost, our overall visit was extremely positive. RJ's doctors are very happy with his overall strength and ability to manage the side effects from his medications (although some days are harder than others). We are grateful for the tremendous care RJ receives from his team of doctors and the very personalized attention that each doctor demonstrates. We celebrate the good news and hope that in 2015 one of the many trials that are currently taking place will show promising results that could benefit RJ.
RJ celebrates being happy doing the things he enjoys!
May you have the Spirit of Christmas which is Peace,
The Gladness of Christmas which is Hope,
and the Heart of Christmas which is Love.
Merry Christmas & Happy New Year from our Family!
The Gladness of Christmas which is Hope,
and the Heart of Christmas which is Love.
Merry Christmas & Happy New Year from our Family!